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Author(s): Teixeira, Flávio
Coelho, Rosália
Proença, Cidália
Silva, Ana
Vieira, Daniela
Vaz, Cláudia
Moura, Cláudia
Viana, Victor
Areias, José
Areias, Maria
Title: Quality of Life Experienced by Adolescents and Young Adults with Congenital Heart Disease
Issue Date: 2011
Abstract: This study aimed to assess the quality of life (QOL) experienced by adolescents and young adults withcongenital heart disease (CHD) and to determine whichfactors negatively affect adjustment and which factorsincrease resilience. The participants in the study were 74patients with CHD (41 males and 33 females) ranging in agefrom 12 to 26 years (mean age, 18.76 ± 3.86 years).Demographic information and a complete clinical historywere obtained. The participants were interviewed regardingtopics such as social support, family educational style, selfimage, and physical limitations. They responded to questions in a standardized psychiatric interview (SADS-L) and completed a self-report questionnaire (WHOQOL-BREF)for assessment of QOL. Compared with the Portuguesepopulation as a whole, the study patients had better QOL,especially with regard to the environmental dimension(t = 3.754; P = 0.000) and social relationships (t = 2.333;P = 0.022). Patients who had undergone surgery experiencedpoorer QOL in the physical dimension (t = -1.989; P = 0.050), in social relationships (t = -2.012; P =0.048) and overall (Mann-Whitney U = 563.000; P =0.037). Social support played a positive role in the QOL of the patients, both in the physical dimension (t = 3.287; P = 0.002) and in social relationships (t = 3.669; P =0.000). A higher school achievement also was associated with higher levels of QOL overall (Mann-Whitney U = 457.000; P = 0.046) as well as in the physical (t = 2.045; P = 0.045) and environmental (t = 2.413; P = 0.018) dimensions. Physical limitations had a detrimental impact on general QOL (Mann-Whitney U = 947.500; P = 0.001) and on the physical (t = -2.910; p = 0.005) and psychological (t = -2,046; P = 0.044) dimensions. Patients with CHD tended to perceive QOL as better when their social networks were supportive.
Subject: Ciências da Saúde, Ciências da saúde
Health sciences, Health sciences
Scientific areas: Ciências médicas e da saúde::Ciências da saúde
Medical and Health sciences::Health sciences
Document Type: Artigo em Revista Científica Internacional
Rights: openAccess
Appears in Collections:FCNAUP - Artigo em Revista Científica Internacional

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