A validação de ferramentas digitais de intervenção psicológica através de métodos de cocriação: o caso da ferramenta "SPA" do projeto PLAY-THE-ODDS

Abstract

INTRODUCTION: Cancer is a multifactorial disease influenced by genetic and environmental factors. Genetic testing is essential for early detection and the implementation of preventive measures, but it also generates psychosocial challenges that require emotional adaptation. Genetic counseling is crucial for communicating genetic information and addressing psychological implications, highlighting the importance of genetic literacy and self-awareness. This work contributes to the development of a cancer risk management tool that integrates self-awareness, focusing on psychosocial genetics in Portugal. The objectives include validating the language and content of the tool to ensure accessibility and effectiveness in therapeutic sessions, as well as assessing its utility for emotional self-monitoring. METHODS: The study was conducted within the framework of the PLAY-THE-ODDS project, which aims to create a playful tool to help parents and children cope with the risk of hereditary cancer, in collaboration with the Faculty of Psychology at the University of Porto and the Portuguese Institute of Oncology in Porto. Using a Human-Centered Design (HCD) approach, the team included patients, healthcare professionals, and designers. The methodology involved creating a representative persona and conducting semi-structured interviews with psychologists. RESULTS: The results indicated that the language of the tool is clear, but a more personalized approach could enhance emotional connection. Users highlighted the need for concrete guidelines for exercises, such as relaxation and mindfulness. Despite the suggestions, professionals recognized the tool's potential as a valuable therapeutic resource. DISCUSSION: The study highlighted the challenge of adapting psychological communication to the digital context of genetic counseling. Although professionals acknowledged the therapeutic potential of the platform, adjustments are necessary before formal integration. The work pointed out gaps in the application of Human-Centered Design (HCD) in psychological health, emphasizing the urgency for clear guidelines for digital interventions.