Information Visualisation Practices for Improving Patient Readability of Blood Pressure, Health Data, and Health Literacy

Abstract

Personal health data obtained through self-monitoring is often presented through standardised representations with little intrinsic meaning for those who may need it the most since low health literacy is associated with poor health. By failing to inform users about their health status, these representations can be dangerous, leaving patients feeling lost, confused, anxious, or even depressed. Information Visualisation can play an important role in aiding patients making sense of their health data and health status, as long as it's aligned with their needs, motivations, and goals. Following Human Centred Design practices, user research methods were applied in order to understand the context of self-monitorisation, as well as identifying which metrics differed the most from participants' mental models. Thanks to quantitative data obtained from a survey, Blood Pressure was identified as the most problematic health variable. A series of interviews allowed patients of chronic conditions to vocalize the challenges they faced in the management of their conditions. Taking into account information obtained from previous steps, multiple ways to map blood pressure data onto design elements were explored and different visualisations were designed. Finally, said visualisations were tested through guided interviews with patients with blood pressure problems. Results showed that participants prefered different visualisations for different goals, and enjoyed being able to choose freely from them; participants with lower literacy but who were deeply invested in monitoring their health found tables to be the most informative visualizations; finally, participants identified colour scales as the most intuitive method to represent health status and health risk.